Monday, November 29, 2010
We are so thankful that everything has gone so smoothly & that she has done so well!!! God has been so gracious to us & I will say that life has a whole new meaning! Everything is different, every moment is special, every smile is a eye opener to the fact that life is a gift! God has blessed us with such an amazing group of friends & family to walk this journey with us & I am forever grateful! Thank you for your love, support, & most important your prayers!
God is so good, God is good, God is so good, He's so good to me!
Oh, give thanks to the LORD, for He is good! For His mercy endures forever.
Saturday, November 27, 2010
Please continue to pray for the Stewart's, Emma had a very rough day yesterday & it was very scary for Scott & Sarah. They are amazing parents & Emma is such a blessing to them. Pray for them to have strength & for Emma to do well until her next surgery. They will be here until March at which time Emma will have her next to last heart surgery.
Thank you for all the love & prayers!
Tuesday, November 23, 2010
Sunday, November 21, 2010
Ready to head to Dallas, I pray that this little angel of ours knows that she is one strong & amazing child of God! He made her so fearfully perfect & wonderfully made!
Holding Lyric... She loves her sleep & she likes it in her bed but knowing that we would not get to hold our precious Lyric for a little while we took our time laying her down.
Night before surgery
The morning of Lyric's surgery, this day was so hard as a parent, I can only say that God's grace is sufficient & He alone held our hearts as Lyric as taken back for surgery & for the 7 hours that we had to wait for the surgery to be complete. Thank you also to our families that were here & for all the prayers being prayed every second!
Waiting for those doors to swing open & for our baby girl to better than ever! We thank the Lord for His grace & love for us! The surgery went so great & Lyric has been the toughest little girl I've ever seen! God is GREAT!
The first time for us to see Lyric after surgery, it was only for a brief moment.
As you know they found an additional problem with Lyric's heart & along with that the surgeon said that this was the largest V.S.D. that she had ever seen most of them being the size of the pinky nail (for a large V.S.D.) & Lyric's was the size of a thumb nail to the first knuckle! When you're talking that in the size of a walnut divided into 4 chambers... God has been so good to protect Lyric through this!
Getting new bandages.
Aunt Randi made Lyric her very own sign :) Make her room look way more like her :)
Bath time!!!!!! I was able to semi-hold Lyric! I will NEVER take the simple joy of being able to comfort my daughter for granted! She cries with no noise due to being intubated & it is the hardest thing to just rub her head & tell her it will all be ok. I so badly want to pick her up in my arms & sing to her!
All full & quite content to sleep! She truly is my hero for being so strong, I only hope as she grows up she knows how strong & brave she is. Thank you for the prayers, from the bottom of my heart THANK YOU!
Call to Me, and I will answer you, and show you great and mighty things, which you do not know
Also Summer got to briefly hold Lyric while she lifted her up to change the bed sheets! It was a beautiful precious moment to get to witness!
Saturday, November 20, 2010
Friday, November 19, 2010
Thank you for the prayers! God is amazing and we are waiting to see little Lyric again!!
My heart feels overwhelmed with gratitude towards God! I will update later tonight.
Thursday, November 18, 2010
Summer is tired, but is holding up well. they are supposed to check-in at 5:30 a.m. and will be able to stay with Lyric through prep time which will take about an hour. During the surgery we will be receiving a call every hour to know how it is going, the surgery will be about six hours long (minimum).
I am sure that I forgot some details but I want everyone to be updated and more importantly praying!
Another huge praise is that Ella is doing great and her surgery went well, Jon and Amy are in the room across from Summer and Trav, even in this I have no doubt that God's hand was in the timing of Jon and Amy being there, because I know Amy has been a huge comfort and blessing to my little sister, by holding her hand and answering all of Summer's questions and concerns. Thanks Amy for letting your life and walk with God through this time be a comfort to Summer!
Wednesday, November 17, 2010
Also Summer and Travis' friends the Burks, with sweet little Ella are headed back down to Dallas tonight and Ella will be having surgery, I believe, tomorrow, so Summer asked us to all be praying for their family too!
"Our God is greater, our God is healer, awesome in power our God...."
Wednesday, November 10, 2010
Speaking of praying, here is one major request, even as I write this tonight I have stopped to clean up throw up with Summer, this seems to be a consistent problem, we feed her through the tube only to pick her up to lose what seems like all of the food she just took, please pray that this will let up. The doctors say that this is normal but it does not make it any easier.
We have a surgery date and we are so thankful for that, that there is an end in sight on this side of it all, but in reality we know this will still be a long journey.
Thanks for the prayers and support!!
Tuesday, November 9, 2010
I am in contact with the case worker from Children's & she is helping us with our lodging while we are in Dallas. We are hoping to be able to stay at the Ronald Mcdonald House near the hospital in order to have a place to go if need be. Thank you for your continued prayer!
Please be praying for our dear friends the Burk's & their sweet baby girl, Ella Dawn Burk.
Also for the Stewart's, we don't know personally but our hearts go out to them.
Scott, Sarah & Emma Stewart
And whatever you ask in My name, that I will do, that the Father may be glorified in the Son. If you ask anything in My name, I will do it.
Monday, November 8, 2010
Thank you for the gifts of love!! We have been so blessed by your generosity & we feel so honored to have such amazing family, friends, & even the love & prayers of those who have never met us! THANK YOU!
I am getting a cold! We can not get sick so please pray that it passes & that Lyric stays healthy! Thank you!
Friday, November 5, 2010
Lyric weighed 9lbs 8oz this morning, she looks & sounds great! We love Lyric's home health nurse, Jennifer... she has been a blessing in so many ways! I will update you the moment we have a date! Thanks to everyone who has prayed to get get us to this place. God has given us much grace so far & we know His grace is sufficient.
Tuesday, November 2, 2010
She will also be starting her Synagis shots this month depending on her surgery date which we're praying we get word tomorrow!
Synagis is the only FDA-approved medication to help protect high-risk babies from severe RSV disease. Even though Synagis is given as a shot by your healthcare provider, it's not a vaccine and it works differently. Each Synagis shot provides a dose of virus-fighting substances called antibodies that help prevent severe RSV disease from infecting your baby's lungs.
She will receive a monthly shot now through March :(
Pray that she handles it well & also for her to continue to maintain & gain weight!