Friday, December 24, 2010

Update

As you all know we had an appointment in Dallas this past Tuesday (sorry to be a slacker & just now post) Lyric had a swallow study done & they found that she is having a little trouble swallowing due to her vocal chord being paralyzed. It can't completely close therefore a little bit of her food was "going down the wrong pipe" & she has a little bit of silent aspiration (Silent aspiration is when food, liquids, or stomach contents are swallowed poorly, and go into the lungs by mistake) They have added a thickener to her formula to give her airway time to close off completely. This has seemed to help tremendously... she hasn't coughed very much at all through her feeds!!! They want us to follow up with an Ear, Nose & Thoat Doctor in 6 weeks & have a speech therapist come to the house weekly to keep an eye on her & hopefully get the report that it is getting better :) Thank you for your prayers & please continue to pray for our dear friends

Jon, Amy & Ella
Scott, Sarah & Emma
Cody & Brittany, baby Taylor went home to be with the Lord on December 12th.

Please pray as they come to mind & have a Merry Christmas!
Love,
The Nichols

Thursday, December 16, 2010

December update

We followed up with Children's Medical Center today & we will be taking a trip back down to Dallas this coming week, they will be doing another swallow study & scope test to check Lyric's throat & vocal chords. She still has no voice, coughs through her feeds & is also having trouble gaining weight. At first we thought a minor cold but the cough is different from a cold cough & only happens when she eats. We don't know why she is having trouble putting on weight because she is at 27 calories per ounce & most babies are on a 20 calorie diet. Overall she is doing good and for that we are so thankful! Thank you all for love & prayers! Merry Christmas!!

Wednesday, December 8, 2010

A heavy heart

Thank you all for the continued prayers on Lyric's behalf, I know that there are so many prayer warriors that come & read Lyric's blog & I am asking for prayer for two very special Heart Family's that we had the honor of meeting while in Texas. Words can not express...

The Stewart's -
Baby Emma was born on Oct the 4th with HLHS & a restrictive atrial septum. She has been through many surgeries & yesterday her parents (Scott & Sarah) were told that it would be in Emma's best interest to place on the heart transplant list. Please pray for them as they come to mind! Emma is such a tough little princess & her parents are two amazing people, loving & giving through it all!
You can follow Emma's blog @

http://emmajanae.blogspot.com/


Emma on her 2 month birthday!

Taylor Dale -
I'm Taylor Dale Paul-Cowan I was born March 24th 2010 with HLHS to my mommy Brittany Cowan and daddy Cody Paul I went home for two weeks without my mommy knowing I had HLHS on April 7th I was rushed to Children's Hospital in Oklahoma City where I stayed for a week before they put me on a jet to come to Dallas Children's Medical Center where I have been since April 14th. ( A little information on Taylor)
Brittany & Cody were told today that Taylor has no chance of survival, this is beyond heart breaking & I can't imagine what they must feel as parents. Praying for you always!
Praying for a miracle!
Taylor's blog

Taylor at six months :)

Thursday, December 2, 2010

We're HOME!!

Last night in the hospital!!
Checking out!



Before & After
Her heart was so enlarged & after only 13 days you can see the difference!

Mellissa are favorite person in all the world... take out that NG tube :)
All taped up

Tape free & Happy!

I can't say enough about how wonderful CMC of Dallas is & everyone that we came in contact with truly went above & beyond!
Mellissa was our favorite :)

At the Ronald McDonald House just chillin!!

We were a little happy to have full release... homeward bound!!

Goodbye room 204! Thank you to the Ronald McDonald House! You all were wonderful & gave us a home away from home!





She was so happy to see her Daddy & he one was happy Daddy too!!!

He had to come back for work & it killed him to be away but we are so thankful that we are all together again at home!!

Thank you for your love, support, & PRAYERS!!
God is so good!!!!!!!!