Today the nurse came to the house to check Lyric's weight & lungs, she sounds great as far as her lungs are concerned but her weight gain is once again not going according to plan. She has only put on an ounce in the past week (she should be putting on 1/2 an ounce to 1 ounce per day on average) so the new plan is to do a continuous feed through the night as she sleeps via a feeding pump. This will help her get better rest & hopefully help her stay awake a little more through the day, having more energy to spend time with mommy ;-). We will be giving her 38 ml every hour as she sleeps from 11:00pm to 6:00am & she will be hooked up to a monitor that will tell if her heart slows down or if she starts having trouble breathing for any reason. We will be doing this until the day of her surgery & are still waiting to hear from Dallas.
The doctors told us that it would be a constant battle to put weight on her but this is way harder than I ever thought. They said that she'll gain, do good, stop gaining, change up her eating, gain, do good for a week or so & then begin to stop gaining they called it the "Frustrating Cycle". This is an ever changing trial & error, but Lyric is such a trooper! I'm so proud to be her Mommy!
Thank you for the continual prayers!
On a cute note all our families are getting their flu shots and today Randi's family went to get theirs and last night they were talking to Belle (our 3 year old niece) explaining to her that she was getting the shot to protect Lyric from germ & to stay well. Belle & Kimber went and handled it like champs! They offered her the mist & she just told them that she needed the shot, they let Belle decide & just like a big girl she did :-) the mist is not recommended for people that may be around Lyric because it's a live virus... Pretty cool that Belle was ready to make the sacrifice necessary without even really knowing! God gave her the strength to handle it like such a big girl!!!